Spinal Cord Injury Resources
Spinal Cord Essentials – www.spinalcordessentials.ca
- Spinal Cord Injury 101: Information website for understanding Spinal Cord Injury and recovery.
- Fragments 1.0 : A Management Guide For Healthy Bones After a Spinal Cord Injury.
- BackBones: Networking site and free support for people with SCI and their families.
- SCI–U: Online destination for e-learning about healthy living with spinal cord injury.
- Apparelyzed: Free spinal cord injury peer support website run by individuals with SCI.
- Spinal Cord Injury Zone: a site archiving important Spinal Cord Injury News and Spinal Cord Injury Information for education and awareness.
- World Health Organization: WHO is the directing and coordinating authority for health within the United Nations system; on their website you will find information on global health news, research and policy.
- Model Systems Knowledge Translation Center: Resources and Factsheets to support individuals living with Spinal Cord Injury.
- Craig Hospital Understanding Research – Finding the Information you Need: Short guide to understanding research on SCI from the premiere rehabilitational hospital in the USA.
- SCI Get Fit Activity Toolkit: a Canadian resource for adults with SCI to meet physical activity guidelines.
- Eat Well Live Well with SCI: a thoroughly researched practical guide to help individuals with spinal cord injury address secondary health complications through nutrition.
For Health Care Providers
- Supporting Clinical Initiatives in SCI (SCI2) : Resource site for better assessment and clinical guidance for your patients with SCI.
- Caring for Persons with Spinal Cord Injury: An eLearning resource designed specifically for family physicians caring for persons with Spinal Cord Injury – developed and hosted by the Ontario Neurotrauma Foundation.
- Craig Hospital Rehabilitation Educational Modules: Short protocols and treatment guidance for various conditions associated with SCI.
- Joseph’s Spinal Cord Injury Resource Centre Links: An on-site library for consumers, patients and families to read or borrow materials, and an online library of resources for practitioners.
- Physiopedia: Universal access to physiotherapy and physical therapy knowledge.
- Evidence Network: Linking journals and policy experts to increase access to credible, evidence-based health information.
- Health Evidence: Searchable database of 3,818 rated systematic reviews evaluating the effectiveness of public health interventions.
- Spinal Cord Injury Knowledge Mobilization Network: Goal is adopt and use the best available practices in SCI care to improve outcomes.
- National Implementation Research Network: Mission is to contribute to the best practices and science of implementation and organization change.
- SCI Recovery Project: Non-profit organization linked to one of top exercise-based recovery facilities in Colorado, USA – news, events, and programs to share.
- American Spinal Injury Association (ASIA) Learning Center:The International Standards Training e-Learning Program, or InSTeP, is a six-module course designed to enable clinicians to perform accurate and consistent neurological examinations of individuals with spinal cord injury.
- Paralyzed Veterans of America Clinical Practice Guidelines: Available for free download
- Wheelchair Skills Training Program: hosted by Capital Health and Dalhousie University.
- Australian Guidelines for Provisions of Wheelchair Equipment and Skills Training Programs: hosted by the New South Wales Government – Lifetime Care and Support Authority.
Organizations and Associations
- Rick Hansen Institute: The Rick Hansen Institute is committed to accelerating the translation of discoveries and best practices into improved treatments for people with SCI. Also, see theRick Hansen Institute YouTube page for interviews and demonstration videos.
- Ontario NeuroTrauma Foundation: Funds research and programs to reduce neurotrauma and to improve the quality of Life for those Ontarians living with a neurotrauma injury. Also click the following link to access Ontario NeuroTrauma Foundation: Resources and Guidelines.
- Roman Reed Foundation: Charitable organization supporting research and awareness to alleviate and understand the effects of Spinal Cord Injury and Paralysis.
- Alberta Paraplegic Foundation: Our purpose is to fund worthwhile scientific and community development projects related to spinal cord injury.
- Reeve Foundation: Founded by late actor Christopher Reeve, dedicated to curing SCI by funding innovative research and improving the quality of life for people with paralysis through grants, information, and advocacy.
- Kessler Foundation: A public charity dedicated to improving the lives of people with disabilities caused by stroke, multiple sclerosis, and injuries to the brain and spinal cord.
- Spinal Research: The UK’s leading charity funding medical research around the world to develop reliable treatments for paralysis caused by a broken back or neck.
- Canadian Physiotherapy Association: Represents over 12,000 rehabilitation professionals dedicated to the health, mobility and fitness of Canadians.
- iCORD – Researchers dedicated to the development and translation of effective strategies to promote prevention, functional recovery, and improved quality of life after SCI.
- Rehab Research Lab – Located at GF Strong Rehab Facility in Vancouver, Rehab Research Lab conducts many research studies in specializing in mobility and recovery from SCI.
- CanWheel – Researchers developing and testing an outcome toolkit and a new, collaboratively-controlled wheelchair (in concert with the Wheelchair Skills Program – Dalhousie University).
- EPIC WheelS – A research project at UBC dedicated to Enhancing Participation In the Community by improving Wheelchair Skills.